Lorenzo Odone
Lorenzo Odone was an American boy born on May 29, 1978, who became known for his battle against a rare genetic disorder called adrenoleukodystrophy (ALD). This condition affects the brain and adrenal glands, leading to severe neurological decline. Lorenzo was diagnosed with ALD at the age of six, and his parents, Michele and Augusto Odone, sought to find a treatment for their son.
In their quest for a cure, the Odones developed a special diet and a treatment involving a mixture of fatty acids, which they called Lorenzo's Oil. Their efforts gained significant attention and raised awareness about ALD, inspiring research and advocacy for rare diseases. Lorenzo Odone passed away on May 30, 2008, but his legacy continues to impact the field of medical research.