Odone Family Foundation
The Odone Family Foundation is a nonprofit organization dedicated to supporting research and initiatives related to rare diseases, particularly focusing on adrenoleukodystrophy (ALD). Founded by the family of Augusto Odone and Michele Odone, the foundation aims to raise awareness and funding for medical research that can lead to better treatments and support for affected families.
In addition to funding research, the Odone Family Foundation also provides educational resources and advocacy for patients and their families. The foundation seeks to connect individuals with similar experiences and promote understanding of rare diseases, fostering a community of support and hope.