Alicia Odone is best known as the mother of Charlie Odone, who was diagnosed with adrenoleukodystrophy (ALD), a rare genetic disorder. In the 1980s, she became an advocate for research and treatment options for ALD after her son's diagnosis. Her efforts contributed to increased awareness and funding for medical research related to the disease. Alicia co-authored a book titled "A Mother's Courage: Talking Back to Autism," which details her family's journey and challenges. She also played a significant role in the development of Lorenzo's Oil, a treatment that has been used to manage ALD symptoms. Her dedication has inspired many families facing similar challenges.