Rare Disease Act
The Rare Disease Act is a piece of legislation aimed at improving the lives of individuals affected by rare diseases. It provides support for research, development, and access to treatments for conditions that affect a small percentage of the population. By promoting collaboration among researchers, healthcare providers, and pharmaceutical companies, the Act seeks to enhance understanding and treatment options for these diseases.
Additionally, the Act encourages the establishment of registries and networks to collect data on rare diseases. This information helps in identifying trends, improving diagnosis, and facilitating clinical trials. Overall, the Rare Disease Act plays a crucial role in addressing the unique challenges faced by patients with rare conditions.